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I agree with you on the pre-existing conditions clause. I worked in a hospital prior to transplant, I also lost my job. I had to pay for Cobra Insurnace which was all of my social security insurnace. I also covered my husband on my insurnace. So my problem was a bit different. We totally lost my income. We barely had enough money to purchase very little food and as everyone knows nutritional food costs more money. I did not qualify for and assistance we were $200.00 above the poverty level. We struggled but my surgery was paid for, and the hospital wiped out any co-pays that I owed. The doctors told my family they gave me to the end of the week to live if no match was found there was nothing else
they could do for me. I was in the hospital the last six weeks in and out of coma’s. Finally a match came in that Friday. It was not an exact size match it was to big, but the pushed it in there. I had my share of complications which I will not cover here. But the bottom line is I was very sick for a very long time even after the transplant. There was a law with Cobra you could only carry it for 18 months. In Delaware the state I live in you could not get on Medicaid unless you were on Social Security ofr Twenty Four months. I was only on Social Security Disability for 18 months that left me with a six month gap no insurance.
I coudl not take that risk of getting ill or having rejection set in and the drugs cost me $1000.00 a month with insurance we could not begin to imagine the cost without insurance. So I had no choice but to find a job. I had to take the first thing that came along and I had to make sure they offered Blue Cross and Blue Shield. I thank my god it did not take me long to find a job in another hospital close to my home but it was not in the area I was experienced in. I was a clerk in Medical Records. It was safe away form contact with patients but I could not adjust. Within three months I found another job working for the state of Delaware in the department of corrections and I am still here today. And doing well with Blue Cross and Blue Shield. I have not even tried to look for other employment for fear I would loose my coverage. I have adjusted to working in a prison but this was never my fist choice or anychoice for a career. I am just happy to be alive I got to see my son get married and I see my only grandson be born along with twelve years of other memorable things that I was there for.